THE CHILD WITH EPILEPSY AT SCHOOL
Posted: under Epilepsy.
Most children with epilepsy go to a normal school and do well. When your child starts at any new school you should talk to their new teachers, who may have very old-fashioned or mistaken ideas about what someone with epilepsy can or can not safely be allowed to do.
Explain to the school about your child’s epilepsy, and tell his or her teachers what will happen if they have a seizure. Tell the matron what drugs the child is on. Usually schools are understanding and co-operative, and a headteacher will pass on to the teachers in charge of the child whatever information you give them. But just occasionally they fail to do so. If the school is large and you get the feeling that the headteacher is insufficiently concerned, it would probably be worthwhile talking to your child’s class teacher yourself, just to make sure that the information filters down to the right level.
The child’s own friends usually accept the fact that he or she has seizures quite matter of factly. A few children do get teased, but teasing is often not as big a problem as most parents expect it to be. Some children even find that their seizures make them more interesting to their peers.
Your child’s teachers probably see almost as much of them as you do and an observant and co-operative teacher is a valuable asset. They may recognize changes in your child’s behaviour or physical state even before you do. Always ask them to discuss any changes they do notice with you; these changes may be an indication that your child’s medication needs adjusting.
WHAT TO TELL THE TEACHERS
Make it clear to the school that you want your child to take part in the whole range of the school’s activities. There is no reason why they should not play games, for example, or swim; in fact (except in rare cases) there is every reason why they should do these things.
Explain to teachers that there is usually no need to send your child home after an attack unless they have been hurt. It is enough just to allow them to sit quietly for a while to recover, before carrying on with normal school activities.
Get a clear and realistic assessment from your doctor about what your child should be capable of. It is a good idea, too, to ask your doctor to arrange for the child to be tested by a psychologist so that you know what his level of intelligence is and where his skills or difficulties lie. Once a child is labelled an ‘epileptic’ there is a real danger that their teachers may underestimate their academic potential and give them neither stimulation nor encouragement. The child who is expected to do badly almost certainly will do badly.
Keep a positive attitude. Emphasize what the child can do, not what they can not. Help them to develop social skills so that they are a likeable person.
Make sure that the staff are prepared to treat your child as far as possible just like the other children, both in terms of punishment as well as reward. Teachers may be tempted to let them get away with too much because they are afraid that discipline or reprimand might cause a seizure. Such special treatment will not make your child popular with the other children.
Keep the child’s attendance at school as regular as you can. The reason many children with epilepsy do badly is simply because they have missed so much schooling.
TAKING MEDICATION AT SCHOOL
Most children with epilepsy are able to take their medication twice daily, outside school hours. But a few may need a dose during the school day. And very occasionally, staff may have to give emergency treatment with rectal diazepam to a child in status epilepticus.
If your child needs to take a dose of anticonvulsant during school hours, make sure that the school has written details about how and when the medicine is to be taken, whether it should be given by a named teacher (in which case the parent should give written permission) or whether the child is to be responsible for their own medication. Secondary school children (unless they have learning difficulties that would make it impossible) should be responsible for taking their own medication. Younger children should be encouraged to be self-reliant too, but it will depend very much on how responsible the child is generally, and whether the school is prepared to allow them this particular responsibility. If the medicine is to be stored (for example, if the school is to keep rectal diazepam for emergency use) you need to agree with the school who is responsible for giving it (they may need special training) and where it is to be kept for easy access if it is needed. Label all medication with the child’s name and the dose and frequency of its administration.
In the current climate, many teachers are uneasy about giving rectal diazepam to a child. To protect teachers against the possibility that they might be vulnerable to allegations of child abuse in these circumstances, two adults should be present if rectal diazepam has to be given to a child.
CHILDREN WHO DO NOT ACHIEVE
When your child is first diagnosed as having epilepsy, one of your first concerns is likely to be about the effect the epilepsy will have on their intelligence and mental ability.
Some children who have epilepsy do, undoubtedly, fail to achieve what they should be capable of at school. But once again, this is nearly always a by-product of the epilepsy and not a direct result of it. Sometimes children underachieve because they have fallen behind in their school work through frequent absences, more often underachievement is due to the drugs they are on, though probably a major factor is also the attitude of parents and the school towards children with epilepsy. For everyone’s sake, ask for your child to be properly assessed by a neuropsychologist so that you and the school have a realistic idea of what they should be capable of, and in which subjects they are likely to have difficulties. If the school is unable to organize this itself, ask your doctor to arrange it by referring your child to the local mental health services for psychometric (IQ and skill measurement) assessment.
Whether epilepsy does cause mental deterioration has been a matter of debate for over 100 years. Rapid diagnosis and assessment of the epilepsy after the onset of the first seizure, and good control of seizures seem to be the most important factors involved. If there is mental decline, it is likely to be most noticeable in the first years (or perhaps even the first few months) after the onset of epilepsy. This initial phase is followed by a stable phase with little further deterioration.
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